Regional Conference

Believe it and achieve it, children and teens with DS

2014 Regional Conference

April 5th, 2014

Marriott West
9960 Wayzata Blvd
Minneapolis, MN 55426

Quick Links

 

*If you are coming from outside the Metro and would like to stay at the hotel, a reduced fee is being offered, $79 a night, just ask for the Down Syndrome Association rate.

Online registration will close on April 2nd. 

Schedule

8:00—9:00 Registration, Continental Breakfast, Exhibitors
9:00—9:15 Welcome from Kathleen Forney, Executive Director, and Kathleen Holiday, Regional Conference Committee Co-Chair

9:15—10:45 Session I Breakouts:

1) Maximizing Speech Intelligibility for Children and Adults with Down Syndrome – Libby Kumin, Ph.D., CCC-Speech Language Pathologist (Ages 6-18)
2) Healthcare Guidelines for Children with DS – Kim McConnell, M.D., Gillette Children’s (All ages)
3) Nutritional Issues and Down Syndrome - Kim Fox (Ages 6-18)
4) Estate Plan Planning for Persons with a Disability – Dave Reedstrom, Disability Planning Specialist (All ages)

10:45—11:00 Break

11:00—12:30 Session II Breakouts:

5) Being Social: Facilitating and Developing Social Skills in School and the Community – Sharon Mulé, Institute on Community Integration, U of MN (Ages 6-18)
6) Solving the Mystery of the Individualized Education Plan (IEP) Process – Julie Harmon, PEAK (Ages 3-16)
7) Positive Behavior Support – Wendy Selnes, M.A., BCBA (Ages 7-12)
8) The Importance of a Good Night’s Sleep – Laurel Wills (Ages 3 and up)

12:30—1:45 Lunch Break

1:45—3:15 Session III Breakouts:

9) Positive Behavior Support (Repeat) – Wendy Selnes (Ages 7-12)
10) Early Childhood Speech Issues – Libby Kumin (Ages 3-9)
11) Fostering Healthy Sexuality – Lindsey Hoskins, Family Tree Clinic (Ages 12-18)

3:15—3:30 Break

3:30—4:45 Session IV Breakouts:

12) Accommodations and Modifications to Curriculum: Keys to Success in Inclusive Classrooms – Julie Harmon, PEAK (Ages 6-18)
13) Sibling Panel – Cameron Cropsey, Rosie Hesla & TBA (All ages)
14) Estate Plan Planning for Persons with a Disability (Repeat) – Dave Reedstrom (All ages)

Workshop Descriptions

Session One

1) Maximizing Speech Intelligibility for Children and Adults with Down Syndrome – Libby Kumin, Ph.D., CCC-Speech Language Pathologist (Ages 6-18)
Why is it often difficult to understand the speech of children and adults with Down syndrome? What can we do at each stage to help develop speech that is easier to understand? Dr. Kumin will present a framework to use for identifying and analyzing the factors that affect speech intelligibility for each individual. Once the factors are identified, there are many methods and techniques that can be used to improve speech intelligibility. How can speech-language pathologists help? How can parents help? Dr. Kumin will present examples of IFSP and IEP goals and objectives that can help develop more understandable speech.

2) Healthcare Guidelines for Children with DS – Kim McConnell, M.D., Gillette Children’s (All ages)
This presentation will provide an overview of the most recent recommendations of the American Academy of Pediatrics, as published in the journal Pediatrics. Changes to the guidelines and areas of potential controversy will be highlighted. Time will be allotted so Dr. McConnell can respond to questions from the audience about medical, developmental and behavioral concerns related to Down syndrome.

3) Nutritional Issues and Down Syndrome - Kim Fox (Ages 6-18)
This workshop will focus on nutritional issues for the child with Down syndrome: nutrient needs, picky eating tendencies, mealtime behaviors, celiac disease, diabetes and weight issues. Suggestions and solutions will be discussed.

4) Estate Plan Planning for Persons with a Disability – Dave Reedstrom, Disability Planning Specialist (All ages)
In the midst of today’s challenging economic climate, families and caregivers need to arm themselves with meaningful information regarding Estate Planning. Especially if your family member with Down syndrome is receiving governmental benefits. Come and learn about the special provisions that must be made to properly and effectively provide for their today and for their future. An attorney will also be present to answer any questions about the drafting of special needs trusts.

Session Two

5) Being Social: Facilitating and Developing Social Skills in School and the Community – Sharon Mulé, Institute on Community Integration, U of MN (Ages 6-18)
Throughout the school years and into the adult world the need to be social is always present. As children grow the cues and support of the school experience fall away and young adults are faced with the need to develop social skills necessary to support community involvement and employment. To be truly engaged in school and the community, not only does an individual need to have an understanding of how to approach social situations, but the community also needs to have an understanding of how to approach the individual. This workshop will focus the process of developing social skills for life both in school and in the adult world. Join us and share in the dialog on ways to address inclusion with a focus on being social.

6) Solving the Mystery of the Individualized Education Plan (IEP) Process – Julie Harmon, PEAK (Ages 3-16)
Have you ever felt like the IEP for your child or student was decided ‘behind closed doors’? This session will de-mystify the IEP process and explore communication skills that can open doors to total IEP team membership. Participants will be guided through the transition from IFSP to IEP, and then focus on the three main stages of the IEP: preparing for the IEP meeting, content of the IEP, and implementation and follow up of the IEP. If you are interested in learning about the basics of IDEA specifically related to IEPs, evaluation and consent for services, eligibility, SMART goals, accommodations and modifications, progress monitoring, and much more, then this is the session for you! Join us for this practical, hands on session that will help you develop a clear understanding of the IEP process overall, and ways you can take leadership to be an effective communicator and ensure the success of all students who have IEPs.

7) Positive Behavior Support – Wendy Selnes, M.A., BCBA (Ages 7-12)
What we Believe about behaviors can directly impact what we can Achieve relative to changing behaviors. This session will offer beliefs about behavior using a functional lens and highlight what can be achieved through this approach. Evidence-based methods to changing behavior will be presented and audience participation is encouraged!

8) The Importance of a Good Night’s Sleep – Laurel Wills, M.D., Pediatric & Adolescent Sleep Medicine, Gillette Children’s Specialty Healthcare (Ages 3 and up)
This workshop will discuss the entire range of sleep problems that impact the quality of life of a child with Down syndrome. Dr. Wills will be reviewing a handout from the newly adopted American Academy of Pediatrics guidelines for care of children and teens with Down syndrome, including sleep advice.

Session Three

9) Positive Behavior Support (repeat) – Wendy Selnes (Ages 7-12)
This workshop is a repeat. See description for workshop #7.

10) Advancing Language Skills from First Words through Elementary School – Libby Kumin, Ph.D., CCC-Speech Language Pathologist (Ages 3-9)
Children with Down syndrome have many communication challenges. This workshop will focus on current knowledge and resources that can help families and SLPs meet these challenges during the preschool to elementary school years. Dr. Kumin will present a model for analyzing, organizing, supporting, and teaching the language skills needed for school success. The role of language in classroom learning, social interactions, and behavior will be addressed.

11) Sexuality – Lindsey Hoskins, Community Educator, Family Tree Clinic (Ages 12-18)
Dealing with a child’s sexuality is a challenge to most parents. Keeping children and young adults from unwanted sexual contact while fostering the development of healthy sexuality is a significant undertaking. This workshop will suggest simple strategies to use when discussing sexual­ity that will help both parents and children feel at ease.

Session Four

12) Accommodations and Modifications to Curriculum: Keys to Success in Inclusive Classrooms – Julie Harmon, PEAK (Ages 6-18)
When it comes to supporting students with disabilities in the classroom, accommodations and modifications are key! In this hands-on session, participants will learn how accommodations and modifications can help a student with Down syndrome be meaningfully included and increase educational outcomes. And, since the IEP is the essential guide, participants will also learn how to be sure individualized accommodations and modifications are included in the IEP. This session is a great chance for families and educators to come together, explore tools and examples of accommodations and modifications that have worked for students with Down syndrome, and gain strategies for success.

13) Sibling Panel – Cameron Cropsey, Rosie Hesla & TBA (All ages)
Three adult siblings will share their perspectives on growing up with a sibling with Down syndrome. What was good and what was not so good; what their parents did well and what they wished their parents had done differently; as well as a glimpse at what they see for their future relationship with their sibling.

14) Estate Plan Planning for Persons with a Disability (repeat) – Dave Reedstrom, Disability Planning Specialist (All ages)
This workshop is a repeat. See description for workshop #4.

Registration Information

Fees

DSAM Members: $60

Non-DSAM Members: $80

Fees include continental breakfast, snacks, lunch and a compendium. Limited scholarships are available. Please contact Kathleen Forney, by email: kathleen@dsamn.org or by phone: (651) 603-0720. Scholarships are available to members only.

Please note: Online registration will close on April 2nd. 

How to register

Register online now by visiting http://weblink.donorperfect.com/regionalconference.

Register by mail by downloading our 2014 Regional Conference Brochure (or just the registration form) and mail with payment to:

Down Syndrome Association of Minnesota
Attn: Regional Conference
656 Transfer Road
St. Paul, MN 55114