External Resources

National Organizations

The Arc

National Down Syndrome Congress

National Down Syndrome Society

National Information Center for Children and Youth with Disabilities (NICHCY)

Local Organizations

ACR Homes, Inc

The Arc of Minnesota

Bridge to Benefits

Brih Design 

Children’s Therapy Centers, Inc

Courage Center

D.A.D.S. National site

Down Up North (Duluth Area Parent Group)


Functional Kids Clinic

Hammer (service provider)

Kid Talk – Advanced Children’s Therapy

Minnesota Association of Centers for Independent Living

Minnesota Children & Youth with Special Healthcare Needs (Through Minnesota Dept. of Health)

Minnesota Governor’s Council on Developmental Disabilities


The Minnesota State Council on Disability

Minnetonka Pediatric Therapy Center


St. David’s Child Development & Family

Special Olympics – Minnesota

Step Ahead Pediatrics (Facebook page)

True Friends (Formerly Friendship Ventures and Courage Center Camps)

Inclusion/Educational Resources

Individuals with Disabilities Education Act(IDEA)

Comprehensive Web Sites

Dr. Leshin’s list of internet sites

Down Syndrome Diagnosis Network

National Association for Down Syndrome (Chicago Area)

Waisman Center

Grandparents with Grandkids with Down syndrome (GWGWDS) – Facebook Group

Down Syndrome Association of Wisconsin

Sibling Support Project 

Round up of breastfeeding Information – Contains links to several sites: Kelly Mom & Native Mothering

Breastfeeding a Baby with Down Syndrome (.pdf) – From the Canadian Down Syndrome Society

Working with Students with Disabilities

Life Pages – find out what opportunities are available in your area

State Services

Minnesota Medical Assistance

Help Me Grow

Medical Information

www.downsyndrometest.org – information about prenatal testing from the Global Down Syndrome Foundation & NDSC

Down Syndrome: Health Issues by Dr. Len Leshin

Growth Charts for Children with Down Syndrome

Healthcare Guidelines (via NDSS.org)

Website Wednesday Links

BrainPop (May 16, 2012)

Moms With Apps (May 30, 2012)

LifePages (June 20, 2012)

Minnesota Children & Youth with Special Healthcare Needs (July 11, 2012)


Updated: 8/12/14