Help support the DSAM self advocates in their community service projects

Lori, Nayef and Mack: We're More Alike Than Different

For years now our self advocates have held a community project at the Walk.  What began years ago as a food drive to stock local food shelves has now become a Food Drive, a Sock Drive and this year we have added Fiona’s Hope Totes to our donation ask.

 

Last year, the self advocates made the decision to donate the food collected at the Step Up Walk to the local Ronald McDonald House.  A lot of our families often find themselves staying at the house while their children are hospitalized at local hospitals.  Since the food drive was begun 7 years ago, the self advocates have collected well over 750 lbs of food.

 

The sock drive began a few years ago and donated socks are given to Sebathani Community Center in Minneapolis. 

 

Fiona’s Hope Totes is a new initiative this year.  The Hope Tote program was launched early this year by DSAM member Stephanie Palewicz whose daughter Fiona spent much of her 24 months hospitalized.  They are tote bag care packages for families that are experiencing an unexpectedly extended hospital stay with their sick child.  Since Fiona’s death in early June, Steph has continued to provide Hope Totes to families in need of this small “bit of home” comfort.  The totes are filled with 5 to 10 oz shampoo and conditioner, body wash, lotion, nail clippers, nail files, facial cleansing cloths, toothpaste, small hairspray, Kleenex, razors and shaving cream, deck of cards.  The complete list can be found on Fiona’s Hope Totes website: www.fionashope.com.  No donation is too small; all will be greatly appreciated.   

 

We hope to see you there! Register today by visiting:dsamn.donorpages.com/StepUpWalk2014/

Step Up Walk T-Shirt Deadline: Tuesday, September 2nd!!

Want an official Step Up walk t-shirt this year?

The deadline for orders is next Tuesday, September 2nd!

 

Make sure to register yourself or your team by the 2nd
if you are ordering one of these lovely Step Up t-shirts:
tshirt
If you are not ordering any shirts this year (many teams make their own!),
remember that you must register by September 22nd to request the
free bag lunch provided the day of the walk.
(Also, free gluten-free lunch option and food vendors available for purchase, or bring your own)
We are so thankful for everyone who has already Stepped Up to raise funds!  

 

Click here to register and set up your personal fundraising page today!
Online registration will close on September 22nd

You don’t want to miss this event!  

If you haven’t done it any of the past 17 years, maybe it’s time you joined us for the Down Syndrome Association of Minnesota Step Up for Down Syndrome Walk, Sunday September 28th, Midway Park Pavilion, Como Park, St. Paul with registration starting at 10:30 AM. Walk starts at noon; lunch served following the walk.

On September 28th we’ll celebrate the accomplishments of our friends and family members with Down syndrome AND raise awareness of Down syndrome in our community. For the past 17 years that has meant a fun-filled day like no other, but topping our amazing Step Up Walk record is really up to you. Bring your family, friends, neighbors, classmates together for a fun and festivities filled day!

There will be so much for your family and friends to enjoy! Live music from the kindie-rock group The Bazillions, and ensemble from the Center for Irish Music. Plus, clowns, face painting, slides and moon walks, and hamster balls.  Returning this year will be the Home Depot tent where kids can make any number of crafts to take home and Twin Cities Music Therapy Services will be hosting a music exploration area. And don’t miss the New Parent Welcome tent hosted by Minnetonka Pediatric Therapy.

 Join us for another fantastic day celebrating the lives of people with Down syndrome!

Click here to register and order shirts/lunches!

2014 Step Up for Down Syndrome Sponsors

Thank you to all of our 2014 Step Up Sponsors who have come in to date! Interested in sponsoring the Walk? Please visit our Sponsorship Opportunities page or contact Marcy with any questions: (651) 603-0720 or Marcy@dsamn.org.

Gold Sponsors

Associated Eye Care: Vision for a lifetimeACR Homes Logo SILVER Showmens Assoc Logo GOLDMinnetonka_logoPediatric Dentistry  GOLD Mar Vista LogoRoxbury New Logomdm-rgb logoJPM Logo GOLDchase logo 2  GOLD

Silver Sponsors

Dentistry for Child & Ado SILVER 2014 OPAL SERVICES Logo SILVER 2014 Midwest ENT SILVER 2014Keep on Paddling Silver

In Kind Sponsors

AAA logo IN KIND 2014 Pepsi Logo 2014  IN KIND Print

Bronze Sponsors

Think Stucco

Kraus Anderson Construction Company

Associated Speech and Language

John P Ginther Agency

American Bank of the North

2014 iCan Shine Bike Camp full

I can bike logo

 

The 2014 iCan Shine bike camp is now full. If you wish to be added to the waiting list, please email our camp coordinator, Mary Hauff at Mary@dsamn.org or call the DSAM office at (651) 603-0720.

Congrats to the holder of ticket #100!

2014 Harley Raffle Bike - Road King FLHR

 

Thank you to everyone who bought tickets for this year’s Harley Raffle!

Because of your efforts we sold out of tickets a few days before the drawing, and this year’s winning ticket is… #100!

We have contacted the winner and he is thrilled.

Thanks again for your support of the Down Syndrome Association and good luck to all who participate next year!

Check out the Harley Raffle Advert Dave Dahl did for DSAM!

Call for submissions for the 2015 “Opening Hearts – Changing Minds” calendar

DSAM Cal 3DSAM Cal 1

The search is on for people with Down syndrome to grace the pages of our Opening Hearts — Changing Minds 2015 calendar. We want to create a calendar that represents the diversity of our membership. Please fill out this application and send it and a photo to DSAM by June 15, 2014. If you have submitted pictures in the past and were not chosen, please try again. We only have twelve months and selecting the twelve out of 60 or 70 submissions is a very difficult task. If you have any questions about the type of picture or the “hows” of taking a good shot, please call our office and one of our staff can assist you. Please do not send pictures smaller that 3 X 5. Digital photos need to be 300 dpi or greater. Submissions can be made online by visiting http://www.dsamn.org/?p=2082

 

 

 

 

Announcing the 2014 Carly May Classic Memorial Golf Tournament

The Down Syndrome Association of Minnesota is honored that the Harris family and the Carly May Foundation continues to offer their support to our organization through their yearly golf tournament in memory of their daughter, Carly May.

Carly May Classic

Memorial Golf Tournament

Supporting the Carly May Foundation

Heritage Links Golf Course

Lakeville, MN

Last year the Carly May Classic Memorial Golf Tournament was another huge success and a wonderful tribute to Carly Harris. Over $125,000 has been raised in six years to support the Carly May Foundation. Mark your calendars for the 7th Annual Carly May Classic Memorial Golf Tournament and Dinner/Silent auction. The tournament will be held Saturday May 17th, 2014 at Heritage Links Golf Course in Lakeville.

All proceeds from this event will directly support the Carly May Foundation, which helps fund organizations to have a positive impact for individuals and their families with Down Syndrome and/or a chronic illness. For more information or to register please go to www.carlymayfoundation.org or like us on facebook or twitter.

The event is always a great time and you do not need to  be a good golfer to participate!! Gather a team and join us  for a wonderful day of golf, food, silent auction, prizes, raffle  and FUN! The cost of the event per person is $150; $30 if you want to attend the dinner and silent auction. Four level  sponsorships are available – your name or company will be recognized during the event. If you are interested in donating  an item, basket or professional service for the silent auction you can contact Carrie Blom via email at ccblom@msn.com or by phone at  651-686-4453.

Register Early, Space is limited!!!!

~ Jaime & Maria Harris and the Carly May Foundation are the 2014 recipients of the University of Minnesota Children’s Hospital Ambassador Award. ~

Thank You For Your Continued Support!!

Maria, Jaime, Carter, Abi, Madi & “angel” Carly Harris

Sara’s Tipsy Pies

SarasTipsyPiesFIN

We are so honored that Sara’s Tipsy Pies will be donating a portion of proceeds of their “Pies with a Purpose” sales to the Down Syndrome Association!

Here is Sara’s story:

On February 18, 2003, my husband Chris and I received our second of five bundles of joy (yes, five!). Madi arrived on snowy February afternoon. She was two weeks early.  To our TOTAL surprise,

Madi was born with Down syndrome.

Everyone said it would be hard, and no doubt, there are extra worries and concerns with raising a child with special needs. But more than anything, having a child with Down syndrome has been a joy, because having children is a joy. Madi’s diagnosis provided me with new perspectives, ways to love and a deeper appreciation for the little things.

I am thankful for the many resources available to help parents of children with special needs; organizations like the Down syndrome association of MN, Special Olympics MN and Valley Friendship Club-Stillwater. Because of their support, I want to continue to raise awareness of what Down syndrome is, what it means to have a child with Down syndrome, and how people with Down syndrome play a vital role in our lives and communities.

Beginning March 1st 2014, Sara’s Tipsy Pies will begin a campaign titled “Pie with a Purpose”; all pies made with Finnegan’s beer (Salted Caramel Apple Pie and Maple Bacon Apple Pie) will have a portion of its proceeds donated to the Down syndrome association of MN.

As a parent, you realize that your love is not based on your child’s ability, but on your own ability to accept your children for who they are and how they enrich your life.  Our daughter Madi is a blessing and a gift.  Thank you to our children, Mason, Madi, Cody, Wyatt and Averi for making our world a brighter, happier place to live.

Extra stuff: Finnegans has generously donated all the beer for this campaign.   Jacquie Berglund AMAZING

Check out Sara’s Tipsy Pies online at www.sarastipsypies.comFacebook, and Twitter and be sure to check out Finnegans!

You can also catch Sara tomorrow on KSTP – Channel 5 at 6 am, 11 am or 4:30 pm news shows.

#DearFutureMom

CoorDown: Il Coordinamento Nazionale Associazioni Delle Persone Con Sindrome Di Down (The Coordination of National Associations of People with Down Syndrome) and Saatchi & Saatchi (a global advertising agency) have produced this wonderful video, #DearFutureMom for World Down Syndrome Day (March 21).

Have your tissues ready…

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