Announcing the 2014 Carly May Classic Memorial Golf Tournament

The Down Syndrome Association of Minnesota is honored that the Harris family and the Carly May Foundation continues to offer their support to our organization through their yearly golf tournament in memory of their daughter, Carly May.

Carly May Classic

Memorial Golf Tournament

Supporting the Carly May Foundation

Heritage Links Golf Course

Lakeville, MN

Last year the Carly May Classic Memorial Golf Tournament was another huge success and a wonderful tribute to Carly Harris. Over $125,000 has been raised in six years to support the Carly May Foundation. Mark your calendars for the 7th Annual Carly May Classic Memorial Golf Tournament and Dinner/Silent auction. The tournament will be held Saturday May 17th, 2014 at Heritage Links Golf Course in Lakeville.

All proceeds from this event will directly support the Carly May Foundation, which helps fund organizations to have a positive impact for individuals and their families with Down Syndrome and/or a chronic illness. For more information or to register please go to www.carlymayfoundation.org or like us on facebook or twitter.

The event is always a great time and you do not need to  be a good golfer to participate!! Gather a team and join us  for a wonderful day of golf, food, silent auction, prizes, raffle  and FUN! The cost of the event per person is $150; $30 if you want to attend the dinner and silent auction. Four level  sponsorships are available – your name or company will be recognized during the event. If you are interested in donating  an item, basket or professional service for the silent auction you can contact Carrie Blom via email at ccblom@msn.com or by phone at  651-686-4453.

Register Early, Space is limited!!!!

~ Jaime & Maria Harris and the Carly May Foundation are the 2014 recipients of the University of Minnesota Children’s Hospital Ambassador Award. ~

Thank You For Your Continued Support!!

Maria, Jaime, Carter, Abi, Madi & “angel” Carly Harris

Sara’s Tipsy Pies

SarasTipsyPiesFIN

We are so honored that Sara’s Tipsy Pies will be donating a portion of proceeds of their “Pies with a Purpose” sales to the Down Syndrome Association!

Here is Sara’s story:

On February 18, 2003, my husband Chris and I received our second of five bundles of joy (yes, five!). Madi arrived on snowy February afternoon. She was two weeks early.  To our TOTAL surprise,

Madi was born with Down syndrome.

Everyone said it would be hard, and no doubt, there are extra worries and concerns with raising a child with special needs. But more than anything, having a child with Down syndrome has been a joy, because having children is a joy. Madi’s diagnosis provided me with new perspectives, ways to love and a deeper appreciation for the little things.

I am thankful for the many resources available to help parents of children with special needs; organizations like the Down syndrome association of MN, Special Olympics MN and Valley Friendship Club-Stillwater. Because of their support, I want to continue to raise awareness of what Down syndrome is, what it means to have a child with Down syndrome, and how people with Down syndrome play a vital role in our lives and communities.

Beginning March 1st 2014, Sara’s Tipsy Pies will begin a campaign titled “Pie with a Purpose”; all pies made with Finnegan’s beer (Salted Caramel Apple Pie and Maple Bacon Apple Pie) will have a portion of its proceeds donated to the Down syndrome association of MN.

As a parent, you realize that your love is not based on your child’s ability, but on your own ability to accept your children for who they are and how they enrich your life.  Our daughter Madi is a blessing and a gift.  Thank you to our children, Mason, Madi, Cody, Wyatt and Averi for making our world a brighter, happier place to live.

Extra stuff: Finnegans has generously donated all the beer for this campaign.   Jacquie Berglund AMAZING

Check out Sara’s Tipsy Pies online at www.sarastipsypies.comFacebook, and Twitter and be sure to check out Finnegans!

You can also catch Sara tomorrow on KSTP – Channel 5 at 6 am, 11 am or 4:30 pm news shows.

#DearFutureMom

CoorDown: Il Coordinamento Nazionale Associazioni Delle Persone Con Sindrome Di Down (The Coordination of National Associations of People with Down Syndrome) and Saatchi & Saatchi (a global advertising agency) have produced this wonderful video, #DearFutureMom for World Down Syndrome Day (March 21).

Have your tissues ready…

Announcing the 2014 Regional Conference

Believe it and achieve it, children and teens with DS

We are so excited to announce our 2014 Regional Conference! Pop on over to our Regional Conference page to check it out: www.dsamn.org/conferences/regional

January News

PSA on KSTP Channel 5

Have you seen our PSA on KSTP? If not, here it is!

iCan Shine Bike Camp

I can bike logo

We are very excited to announce our 2014 bike camp, which will be held at Hamline University August 3rd – 8th (Sunday the 3rd is an obligatory orientation for parents/caregivers). The camp fills first come, first serve, so get your registrations in – camp fills up fast! Applications for bike camp are already coming in. Don’t miss out!

Please visit our iCan Shine page for more information: www.dsamn.org/icanshine

 

January/February Newsletter available

Visit our newsletter page, www.dsamn.org/newsletter, to read the latest issue of Special Times. If you would like to receive the newsletter as an email only, please email Kate@dsamn.org with your request.

Annual Harley Raffle

2014 Harley Raffle Bike - Road King FLHR

Our annual member picnic and Harley Raffle will be held on June 8, 2014 at Columbia Park in Minneapolis. Raffle tickets are $300 and only 100 tickets will be sold. For more information about the bike and the raffle please visit www.dsamn.org/harley.

 

 

 

Other events

  • Regional Conference – April 5th, St. Louis Park, MN
  • Grandparents Conference – May 10th, Plymouth, MN
  • Youth & Adult Conference – May 31st, St. Louis Park, MN
  • Adult Matters Conference – May 31st, St. Louis Park, MN

More information about these events will be sent out when it becomes available.

Are you on our mailing list?

Get news and updates from DSAM. Just click the link below to join.

Sign up for our email newsletter

 

Some day this won’t be news

Have you seen the video of Rion Holcombe getting his acceptance letter to college (ClemsonLIFE program at Clemson University in Clemson, S.C.)? If you haven’t, here it is:

 

 

We hope that in the future that events like this will be common place and a person with a disability getting accepted to college won’t be news worthy. Until then, enjoy this awesome video!

You can look for programs like the one Mr. Holcombe will be attending in Minnesota by visiting thinkcollege.net, which is a s a national organization dedicated to developing, expanding, and improving inclusive higher education options for people with intellectual disability.

 

News from the office – December 2013

Annual Holiday Party

Don’t miss out on our annual Holiday Party, this coming weekend, December 14th at Fraser School in Richfield.  Our holiday open house runs from 9 to noon. Stop buy and visit with Santa, decorate some cookies, make a craft project and visit with friends! For more info click here: http://www.dsamn.org/events/annual-holiday-party/

Calendars – get them while they last!

The 2014 calendar is selling like hot cakes! Get yours today by visiting our calendar page: http://www.dsamn.org/support-us/merchandise/opening-hearts-changing-minds-calendar/

Conference time!

Planning is underway for THREE conferences that will be held in the spring: our biennial Regional Conference, the Annual Youth & Adult conference and the Annual Adult Matters Conference. While we are looking at locations and setting dates, we would love to hear from you! Let us know what topics you would like to see at any of the conference or if you have speaker suggestions! Please email us at dsamn@dsamn.org

Board of Directors election results

We would like to welcome new board members Don Schwartz and Brandon Yerxa to the Board of Directors. We are excited that Caryn Addante and Jerry Cooper will be joining us for another three years of service.

We are sad to see current Board President, Craig Parker, Vice President, Jessica Marsolek, and Board members Annah Smith and Ann Strom leave. Thank you for your service, it has been invaluable and we look forward to working with you in other capacities in the future!

ReelAbilities Twin Cities – Don’t miss it!

ReelAbilities will be making its Twin Cities debut from November 1 – 5. ReelAbilities: NY Disabilities Film Festival is the largest festival in the country dedicated to promoting awareness and appreciation of the lives, stories and artistic expressions of people with different disabilities.

The festival’s 15 films screen at the St. Anthony Main Theatre, located at 115 SE Main Street in Minneapolis, the tickets are $10 to individual screenings. Discounts for groups are also available.  The St. Paul Jewish Community Center at 1375 St. Paul Avenue in St. Paul will be showing two films on Sunday, November 3rd, running from 1 to 3 pm. Tickets are available only at the door: $7.50 or $5 JCC Member Value Price. The ReelAbilities: Minneapolis-St. Paul Disability Film Festival kickoff at MacPhail Center for Music is free, but by invitation only. The MacPhail Center for Music is located at 501 S. 2nd Street in Minneapolis.

More information, including a full roster of titles, screening times, and links to purchase tickets online, is available on the festival website at www.minneapolis.reelabilities.org.

We hope that you will join us for the screening of Anita at St. Anthony Main Theatre at 6:30 on November 4th. The evening will be hosted by PRI and DSAM, with Executive Director, Kathleen Forney and member, Don Schwartz facilitating a discussion afterwards.

Maeve & the Superheroes

Maeve & superheroes

Have you registered for the Step Up Walk in St. Paul?

Although the deadline to register for t-shirts had passed, registration is still open.

If you have not registered yet, please visit dsamn.donorpages.com/StepUpWalk2013 to sign up, make sure you give us an accurate count of walkers and the number of free bag lunches (and/or gluten free lunches) you would like.  Need to register more walkers? Please use this link: weblink.donorperfect.com/SUDS.

For those requesting bag lunches, you will only be able to get your lunch with a ticket you will receive when you check in on September 29th!

Fun for the whole family

New this year:

  • Pony rides! Oh yeah, we said pony rides!
  • Stop by the Twin Cities Music Therapy Services tent for some hands-on music experiences!  You can make an egg shaker, explore a variety of instruments, and join in singing and playing live music with Minnesota’s only Nordoff-Robbins Music Therapist. www.TwinCitiesMusicTherapy.com

Returning

  • Home Depot tent – the Home Depot generously donated 400 craft kit projects. Kids will be able to pick out a craft, make it and take it home!
  • Games 2U – If you can’t leave your video games at home, we’ve got ‘em here! Also have tons of fun on the giant hamster balls!
  • And as always – inflatables! In addition to the slide and bounce house, we’ve added an obstacle course!

We look forward to having a fantastic day on September 29th with all of you, so please visit dsamn.donorpages.com/StepUpWalk2013 to register today! Watch for your email for updates as they become available!

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